4 Months Old!!!

Disclaimer:  Might be hard to read, again!  Sorry if these posts bring our blog followers to tears, but it is fabulous therapy for the mom and dad...okay, the mom is the one writing the posts, but they are thoughts we both share!

Happy 4 month Birthday, William!!!

Welcome to the world, William!

 

1 month old!

2 months old!

 

3 months old!

4 months old!

 

 

Dearest William,



I woke up this morning thinking of all that you have endured in the last 4 months.  Wow!  You are truly an inspiration to us.  Each day when another hurdle is on your track, you just hurdle it like it wasn't even there.  You surprise everyone with your ability to take it all in stride.  A gentle little man despite all the hardships you have faced and continue to face. 

When I was pregnant with you, Dr. Gollier would tell us all the time that at least 1 person in the room was happy with how things were going, YOU!  And, now, we have doctors tell us everyday how happy they are with where you are on the course of life and that they are happy to take care of you.  Dr. Tieves is hooked on our boy....and Dr. O' Brien has no explanation for how fast you can heal.  So, keep going strong little man.  BECAUSE we are so happy to have you in our lives. 

You have gone through 2 open heart surgeries, 2 cardiac cath attempts, 2 ambulance rides, way more than 2 hospital beds, 2 weeks at home, and TOO many days in the hospital.  Yet, you keep fighting.  William, you inspire us!  We are all so unsure of what will unfold for you each morning when we wake up.  But, know this, God has a plan for you.

Almost 2 weeks ago, daddy and I were given some scary news regarding your pulmonary veins.  Your heart surgery was a success.  The confluence was opened up just as expected, but you still have increased right side heart pressures.  So, a CT Angiogram (your second one) was performed.  The CT revealed that 3 out of 4 pulmonary veins are extremely small.  The doctors aren't sure of why they are small.  There are three different courses with hypoplastic pulmonary veins.  1. They are small because you are small (GROW)  2. They are inflamed from surgery and constant pressure (TIME, and maybe, MEDS)  3. Congenital Disease (Progressive disease with poor outcomes).

So, you are now on a FEED and GROW plan here at CMH.  You number one job is to rest and gain weight.  We all want you to have every opportunity to grow to see if they will grow with you.  You are receiving breastmillk with formula added to boost calories...plus, heavy fat from all of that double skimming.  More fat with less volume.  We know that you want to do things that all 4 month old babies do like rolling over (which you tried last week...bought you a big boy bed!!), cutting teeth (we weren't quite ready for them, but they are poking up), smiling and giggling (bring them on big stuff!), watching people (your brother and sister are ready for this), etc.  BUT, we need you to conserve as much as possible. 

Today marks 4 months here, the rest is yet to come.  So, take it easy little man.  Time is on your side.  We are trying to swallow the Tincture of Time Pill....a hard one to swallow.  Our entire family and the many prayer warriors want you better already, but TIME is what you need.  We need you to have the most time to see what it is to come.

We love you,

Mommy (and Daddy, too!)